Autism Misdiagnosis Claims | claims.co.uk ™
 
Or call free on:
0800 234 6438
We take your data seriously. See our privacy policy & terms.
By submitting this form you agree to be contacted by our partners.

Autism Misdiagnosis Claims

Have you or your child received an autism misdiagnosis? The implications can be serious, whether it’s being wrongly diagnosed with the condition or failing to obtain a diagnosis despite numerous consultations.

The vital thing to know is that you have every right to make a compensation claim and hold negligent specialists accountable. Using the online form or calling 0800 234 6438 means you can get the ball rolling on your compensation claim.

A specialist legal advisor will evaluate your case and connect you with a solicitor.

What is autism?

Autism Spectrum Disorder (ASD) is a complex developmental condition that affects people in numerous ways – depending on the severity and symptoms.

It’s important to remember that autism isn’t a disability or disease, but people with ASD are wired a little differently (hence the term neurodivergent).

As a spectrum condition, ASD manifests in various ways. While some people might have mild difficulties, others exhibit various behavioural symptoms.

Let’s take a look at them.

Social Challenges

Some people with autism have problems understanding social cues and struggle to make eye contact, which is often misconstrued as rudeness. Due to their different communication methods, others might struggle to form relationships and make friends.

Communication issues

It’s common for individuals on the autism spectrum to face issues with communication, including not understanding tone of voice, conveying their feelings and understanding others. These symptoms can be mild and hardly noticeable, but severe cases might lead to mutism.

Behavioural symptoms

People with autism often prefer repetitive activities and routines instead of change. When unexpected changes happen, negative thinking patterns and behaviours can occur. Individuals with Level 3 autism might have meltdowns and outbursts of rage.

Sensory issues

ASD also causes sensory issues, with many people reacting to light, smell, touch and noise. While some are hypersensitive, others might be undersensitive, leading to struggles with social interactions. When sensory overloads occur, they can have physical and mental reactions.

The types of autism spectrum disorder (ASD)

In the past, there were different types of autism, including classic autism, Asperger’s and pervasive developmental disorder. In 2013, the Diagnostic and Statistical Manual changed to represent the fact that autism is a spectrum, outlining three different levels of severity:

Level 1: Requiring support

This category of autism is the least severe. Individuals might experience minor communication difficulties, struggle with anxiety and need time when adapting to social situations. Other symptoms include repetitive behaviours and some mental health difficulties.

Level 1 autism diagnoses are similar to Asperger’s, as most individuals are high-functioning but might need some support.

Level 2: Requiring substantial support

Level 2 autism is more severe than Level 1, with individuals often needing support to communicate, socialise and manage daily activities. Many people also have restrictive interests, which can seem obsessive in nature.

Level 3: Requiring very substantial support

As the most severe category of autism, Level 3 conditions often cause a range of communication difficulties, with some people not communicating verbally at all.

Individuals with Level 3 ASD might have adverse reactions to change and engage in limiting behaviours. Most will need ongoing educational and social support and help to perform daily activities.

How long does it take to get an autism diagnosis?

There’s no set timeline for an autism assessment, as each region experiences various waiting times. In most cases, children receive priority over adults, resulting in earlier diagnoses.

Generally speaking, an ASD diagnosis takes between a few months and over a year, but some areas will be busier than others. Many people decide to get a private diagnosis, but paying for an assessment might not be an option.

How can autism be misdiagnosed?

Individuals with ASD typically experience a range of symptoms that affect social interactions, behaviour and communication. While specialists can identify autistic traits by assessing a person’s history and symptoms, misdiagnoses can occur.

Delayed diagnosis

While many young autistic children receive an early diagnosis today, there were many misunderstandings about autism in the past. Unfortunately, this means that adults are receiving new diagnoses frequently after years of challenges.

Research published by The Lancet shows that children have a high rate of diagnosis in the UK, while adult rates remain low. Many children with ASD symptoms are identified at school, but educational institutions didn’t recognise autism as much in the 80s and 90s.

Overshadowing from other disorders

ASD shares traits with many mental health problems, which could lead to an incorrect diagnosis. While some specialists might diagnose autism when an individual has another disorder—or vice versa. The most common conditions that lead to confusion include:

  • Obsessive Compulsive Disorder: OCD manifests in different ways, but the repetitive behaviours, compulsions and anxiety make it hard to differentiate from autistic traits.
  • Anxiety Disorders: Some forms of anxiety, including social anxiety disorder, can seem similar to autism, but individuals with ASD struggle to understand social cues. People with social anxiety symptoms understand those cues but deal with high anxiety levels.
  • Mood Disorders: Depression, bipolar disorder and even personality disorders can be confused as autism symptoms, as many people struggle with changing moods and depressive states.
  • ADHD: ADHD can cause attention issues and lead to impulse control issues, but autistic people struggle with communication, social activities and repetitive behaviours.

Specialists should be able to refer to the diagnostic criteria and assess people based on their symptoms. So, if you receive an incorrect diagnosis, you could claim compensation.

Gender differences

There’s no recognised medical test for ASD, with specialists often relying on an individual’s history, behaviours, and symptoms. In the past, autism was regarded as a condition that primarily impacted males, leading to missed diagnoses in females.

Research shows that 1 in 100 boys and 1 in 500 girls were diagnosed in the 1990s, highlighting serious misunderstandings about autism prevalence.

Autism appears differently in females, with many being able to mask the traits. Unfortunately, this means many women who don’t display stereotypical autistic characteristics might be misdiagnosed with a personality disorder or other conditions.

Injuries and difficulties associated with misdiagnosed autism

When healthcare professionals fail to make the correct diagnosis, it can lead to a range of effects, including physical, emotional, mental and struggles with daily life. They include:

  • Incorrect Medications: If autism is mistaken for a psychiatric condition, specialists will usually offer mood stabilisers, antidepressants and antipsychotics. All of these medicines can lead to side effects.
  • Emotional Challenges: Failing to receive a diagnosis of autism can lead to emotional distress and isolation. In contrast, being misdiagnosed with autism instead of relevant psychiatric conditions might cause severe mental health difficulties, including eating disorders and dangerous behaviour.
  • Poor Relationships: Many people who receive an incorrect diagnosis might withdraw and isolate themselves from all forms of social interaction and relationships.
  • Missed Opportunities: An early diagnosis of ASD means children receive support throughout their adolescent years, preparing them for adulthood. Misdiagnosing autism means the person could miss out on building relationships or pursuing educational opportunities.

How can I claim compensation for autism misdiagnosis?

If you’d like to make a compensation claim for an autism misdiagnosis, the first step is to determine your eligibility. Calling 0800 234 6438 or filling out the online form gives you access to free legal advice.

If the specialist thinks you have a case, they’ll refer you to a no win no fee solicitor, who will fight for compensation on your behalf.

Can I make a no win no fee autism misdiagnosis compensation claim?

Conditional fee compensation solicitors don’t charge hourly rates, which means there are no upfront legal costs. Instead, they’ll only receive a fee if your case is successful.

Many people prefer these claims, as there are no financial risks, and the solicitor only takes on the case if they feel there’s a strong chance of success.

How much compensation can I claim for autism misdiagnosis?

The amount of compensation you receive depends on numerous factors, including the degree of negligence and the impact misdiagnosis has on your life. It’s also essential to remember that all compensation claims are based on two elements: general and special damages.

  1. General Damages: These damages refer to the misdiagnosis itself, along with any pain and suffering.
  2. Special Damages: Any expenses associated with your misdiagnosis fall into the special damages category. These can include travel costs, care, medical bills, and more.

Because of the complexity of ASD misdiagnosis claims, it’s nearly impossible to say how much you’ll receive until your solicitor evaluates the case. It also depends on the effects of your misdiagnosis, such as mental health issues and other medical conditions.

What evidence do I need for an autism misdiagnosis claim?

Evidence is vital for compensation claims, as it outlines medical negligence and ensures the negligent party takes responsibility. Your no win no fee solicitor will gather evidence on your behalf, including:

  • Medical Records: Your medical records provide clear evidence of your interactions with doctors and mental health professionals. These notes can be beneficial for overlooked females and individuals diagnosed with psychiatric conditions.
  • Treatment plans: Your medical records will also highlight former treatment plans and their impact. For example, if you receive antipsychotics or any other form of medicine, the treatment plans will highlight this and detail whether they were effective.
  • Witnesses: People who know you and can see the impact of your misdiagnosis can provide accounts of how it’s impacted your life. These can be beneficial if you didn’t receive a formal diagnosis of autism or were diagnosed with ASD instead of another condition.

Can I claim on behalf of my child?

Yes, parents can make a claim for a child under 18. These claims can be beneficial if your child needs extensive medical care or support with all aspects of daily life.

Claiming compensation on their behalf means giving your child the best possible support and ensuring their educational needs are met. Compensation can also benefit adolescents, as it enables them to receive counselling and ongoing support, making the transition to adulthood easier.

If you’re over 18 and can prove ASD negligence before this date, you’ll have up to three years to file a claim.

Is there a time limit on making an autism misdiagnosis claim?

In most cases, you’ll have three years from the date of your diagnosis to make a compensation claim. There are some exceptions, including for children who claim after turning 18 and individuals with limited mental capacity.

It’s best to make a claim as soon as possible, as this gives your solicitor enough time to gather evidence and present your case to the negligent party. While some claims are relatively quick to settle, others might take more time for the following reasons:

  • Both parties struggle to reach an agreement, leading to further negotiations.
  • The case goes to court, which will take a lot longer to settle.
  • Your solicitor needs to collect more evidence to prove negligence.

Filing your claim early means you’ll have plenty of time to receive the settlement you deserve.

Who pays for autism misdiagnosis claims?

The party responsible for handling a GP negligence claim depends on who was at fault. If your negligence occurred within the NHS, your case will typically be managed by NHS Resolution, a specialised body that handles claims against the health service.

If you believe negligence happened within a private healthcare setting, the process differs. In these instances, the healthcare provider’s insurance company is usually responsible for managing the claim.

Other Important Information

*No Win No Fee

  • Although all our cases are handled on a no win no fee basis, other costs could be payable upon solicitors request. These will be fully explained to you before you proceed. Most customers will pay 25% (including VAT) of the compensation they are awarded to their law firm, although this may vary based on individual circumstances. Your solicitor may arrange for insurance to be in place for you to make sure your claim is risk free. Termination fees based on time spent may apply, or in situations such as: lack of cooperation or deliberately misleading our solicitors, or failing to go to any medical or expert examination, or court hearing.
  • *Criminal Injury Claims

  • If you want to make a claim for a criminal injury, you are not required to use the services of a claims management company to pursue the claim. You can submit your claim for free on your own behalf, directly to the Criminal Injury Compensation Authority (England, Wales, and Scotland) or the Criminal Injury Compensation Scheme (Northern Ireland).
About the Author

Nicola Laver LLB

Nicola is a dual qualified journalist and non-practising solicitor. She is a legal journalist, editor and author with more than 20 years' experience writing about the law.

When you submit your details, you'll be in safe hands. Our partners are National Accident Helpline (a brand of National Accident Law, a firm of personal injury solicitors regulated by the Solicitors Regulation Authority). They are the UK's leading personal injury service. Their friendly legal services advisers will call you to talk about your claim and give you free, no-obligation advice. National Accident Law may pay us a marketing fee for our services.

By submitting your personal data, you agree for your details to be sent to National Accident Law so they can contact you to discuss your claim.

If you win your case, your solicitor's success fee will be taken from the compensation you are awarded - up to a maximum of 25%. Your solicitor will discuss any fees before starting your case.